The integration of public, patient (parent/child) and interested parties opinion into all of the above, ensuring inclusivity and relevance of the research to all of society
Aim: Work closely with patients, children and interested parties to deliver meaningful, inclusive research.
Public and Patient Involvement and Engagement (also known as PPI or PPIE) is about members of the public working in partnership with researchers. We use the National Institute for Health and Care Research (NIHR) definition of public involvement: “Public involvement in research is research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.”
Our research as part of the TOPIC programme is underpinned by input and advice from a Public Advisory Group consisting of four parents of children who live with either eczema or food allergy, or both. We meet with them twice each year and provide quarterly updates about our work. We also call upon a larger group of members of the public for adhoc input and advice on different areas of our research.
Visit the How to get involved page to find out more.
Louise Ting at ARC West in Bristol developed this useful diagram to demonstrate the many ways that people can get involved throughout the lifecycle of a research project. Visit the ARC West Website to find out more.
